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I’m heading back to Lafayette, La, for my next appointment with my neurosurgeon. She’s the best in the state (far better than the local doctor with which I’ve dealt.) I call him Dr. NO as in, “There’s no way I’ll see him again. I’ve come up with other terms of endearment for him, but cannot say them here.
My current doctor has an eye for details and a blunt but truthful way of explaining things.
Two words that scare the $@#% out of me are, “permanent disability,” which she drove home repeatedly during last month’s visit.
She doesn’t pull any punches. That’s one of the things I like about her. (Still doesn’t mean I like having a permanent disability.
I still hold on to hope, but only because of the support and loving encouragement I get from my dear friends and family.
I’m not going to name them, but if you’re reading this, you’re likely one of the few about which I’m talking. So, thank you. I love you.. More than you know. You see past my Feeling Twisty days and treat me as if I’m not tripping over my pretzelish-shaped body.
Today’s visit will include looking over images from my MRIs, specifically, the basal ganglia region.
I’ve tried reading the images, but can’t tell much from them. I do like this image, though,

I think I look like a species that The DOCTOR might come across during his travels through time and space.
I’ll keep you posted on what’s up next for me.
Again, thank you for your thoughts, prayers, and words of encouragement.
As I deal with dystonia and it’s alleged permanency, my thoughts and prayers are going to my Uncle Red and the whole Francis family. He has Parkinson’s Disease and is very near passing. I love you Uncle Red and your children.
So, to summarize: dystonia sucks, permanent disabilities suck, Parkinson’s Disease sucks, and saying goodbye to loved ones sucks.
But for the support I continually receive I would say my life sucks.

P.S. Please excuse any rambling and misspelled words. I’m exhausted and I’m not wearing my glasses.



  1. Good luck with your appointment. I do pray for you and your family. Sure would like to know “dr no’s” name just for avoidance purposes šŸ™‚


  2. Love you, too, Mike!
    Pat & Charlie


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